Last week the Dutch magazine ‘Vriendin’ published an in-depth interview with EMEC co-founder Evelien Van Den Brink. The interview talks about severe ME/CFS, stigma and misconceptions, a lack of scientific research, problems with graded exercise and cognitive behaviour therapy and the European petition Evelien started to make a positive change.

We have translated the interview to English so that patients from all over Europe can read it. We hope it helps to inform friends and family about what ME/CFS is like, how debilitating the illness can be and how patients are fighting to make progress.