Horizon Europe

The Horizon Europe research program is a large scientific research initiative by the European Union that spans the years 2021-2027. The initiative has a budget of approximately 100 billion euros of which 7,7 billion has been allocated to the cluster “Health”. Horizon Europe forms an important opportunity to support and encourage scientific research into MyalgicContinue reading “Horizon Europe”

EUROMENE

EUROMENE is an integrated network of researchers and scientists who study the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The term EUROMENE is the acronym for European Network on ME/CFS, a COST Action project supported by the European Union. The aims of EUROMENE are to foster strategies for collaboration and harmonization of diagnosis and research andContinue reading “EUROMENE”

What is ME/CFS?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating, chronic illness that affects many body systems. Patients can suffer from extreme exhaustion, unrefreshing sleep, problems with thinking and concentration, pain, orthostatic intolerance and many other symptoms. A hallmark feature of ME/CFS is a marked symptom exacerbation following exertion, which is referred to as post-exertional malaise (PEM). ME/CFSContinue reading “What is ME/CFS?”

Speech

On 3 October 2019 EMEC co-founder and ME/CFS patient Evelien Van den Brink made a powerful speech in the European Parliament. A video recording and (unofficial) transcript of the speech and subsequent comments by European officials are provided below. EU Committee on Petitions – Committee meeting – 3 October 2019 Tatjana Ĺ˝danoka, vice-chair of theContinue reading “Speech”

Join our Facebook group

EMEC works in collaboration with ME Action, a Los Angeles-based organization that supports ME/CFS advocacy projects around the world. ME Action has created a strong online network for ME/CFS patients and their loves ones including several popular Facebook groups. The #MEAction European Union (EU) Facebook group has been an important meeting place for ME/CFS advocatesContinue reading “Join our Facebook group”

Petition

EMEC co-founder Evelien Van Den Brink has submitted petition No 0204/2019 on a request for funding for biomedical research on Myalgic Encephalomyelitis. The petition has received strong support from the ME/CFS community and has been signed 14.000 times In March 2019 Dutch ME/CFS patient Evelien Van Den Brink submitted petition No 0204/2019 to the EuropeanContinue reading “Petition”

Resolution

On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “Resolution”

Open letter

More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The open letter and a full list of signees is available below. Open letter on funding for biomedical research into Myalgic Encephalomyelitisin the European Union Myalgic Encephalomyelitis (ME), sometimes referred to asContinue reading “Open letter”