EMEC works in collaboration with ME Action, a Los Angeles-based organization that supports ME/CFS advocacy projects around the world. ME Action has created a strong online network for ME/CFS patients and their loves ones including several popular Facebook groups. The #MEAction European Union (EU) Facebook group has been an important meeting place for ME/CFS advocatesContinue reading “Join our Facebook group”
Author Archives: EMEC team
How to sign the petition
The following information provides detailed instructions on how to sign Petition No 0204/2019 on a request for funding for biomedical research on Myalgic Encephalomyelitis. EU-citizens are advised to sign the petition online while non-EU-citizens can only sign the paper version. How to sign the petition on paper 1) print out this template and fill inContinue reading “How to sign the petition”
Petition
EMEC co-founder Evelien Van Den Brink has submitted petition No 0204/2019 on a request for funding for biomedical research on Myalgic Encephalomyelitis. The petition has received strong support from the ME/CFS community and has been signed 14.000 times In March 2019 Dutch ME/CFS patient Evelien Van Den Brink submitted petition No 0204/2019 to the EuropeanContinue reading “Petition”
Resolution
On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “Resolution”
Open letter
More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The open letter and a full list of signees is available below. Open letter on funding for biomedical research into Myalgic Encephalomyelitisin the European Union Myalgic Encephalomyelitis (ME), sometimes referred to asContinue reading “Open letter”