On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “European Parliament adopts ME resolution”
Author Archives: EMEC team
Press release – Scientists call for more European research on ME/CFS
Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and their loved ones.Continue reading “Press release – Scientists call for more European research on ME/CFS”
Research into the long-term consequences of the COVID-19 pandemic
In an open letter published on ME Awareness Day 2020, Evelien Van Den Brink asks the European parliament to make sufficient funds available for scientific research into the long-term consequences of COVID-19. COVID-19 has an enormous impact on European countries. The great number of people who have become infected, the severity of the infection, andContinue reading “Research into the long-term consequences of the COVID-19 pandemic”
Europe Day 2020
Today, 9 May, is Europe Day! A perfect time to celebrate the values of peace and unity on our great continent #EuropeDay On May 9th 1950 French Foreign Minster Robert Schuman presented his plan that would eventually lead to the formation of the European Union. The goal was to maintain peaceful relations between European countries. TheContinue reading “Europe Day 2020”
EU Committee adopts motion for resolution on ME
On Thursday, April 30th 2020 the Committee on Petitions of the European Parliament (PETI) adopted the Motion for a Resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). All 30 votes were in favour of the resolution, there were no abstentions. A press release about the vote was published on the website of the European Parliament.Continue reading “EU Committee adopts motion for resolution on ME”
Voting the ME resolution part I
The Committee on Petitions of the European Parliament will vote on the Short Motion for a Resolution on ME on Thursday, April 30 2020, 10:00 – 12:00 CEST. The draft Motion is available in English in the link below. You can find the announcement of the meeting here. Select your language in the top left corner. The agenda ofContinue reading “Voting the ME resolution part I”
Documents
An overview of all EMEC documents can be found here: Evelien’s response to the European Commission 30-08-2019. The European Commission responded to the petition by Evelien Van Den Brink on 30 August 2019. In her reply, Evelien writes that she appreciates that the European Commission recognises the importance of ME/CFS research but that “unless the Commission introduces specificContinue reading “Documents”
A name and a website
Our advocacy group adopted an official name and created a website. Dear friends, Hopefully, this message finds you well. The COVID-19 outbreak has a deep impact on our societies. We hope you and your loved ones are safe. Despite the difficult circumstances, there are hopeful signs from our community. Many of us are still working tirelessly to improve the situationContinue reading “A name and a website”
Case definitions
There are several diagnostic criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) that determine how the illness is defined in scientific research and clinical practice. In biomedical research, the Canadian Consensus Criteria (CCC), published in 2003, are commonly used. In a survey by ME Action the CCC were judged to be the best case definition forContinue reading “Case definitions”
Help4ME
Help4ME is one of the few ME/CFS research projects the European Union has invested in. It will test the efficacy of GutMagnific®, a probiotic designed to correct the gut microflora imbalance in patients with ME/CFS. The project is coordinated by ImmuneBiotech Medical Sweden AB and has received an EU contribution of 50.000 euro through theContinue reading “Help4ME”