A parliamentary interest group for ME/CFS

On 28 January 2022, the first meeting of a new parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was held. Organized by Pascal Arimont, the group will allow for a more structured collaboration on topics concerning the illness ME/CFS in the European Parliament. The meeting brought together patient representatives, Members of the European ParliamentContinue reading “A parliamentary interest group for ME/CFS”

Evelien responds to the EU Commission

On 18 August, Commissioner Mariya Gabriel responded to questions raised by Member of Parliament Jordi CaƱas regarding the recent ME/CFS resolution. Unfortunately, the answer, provided on behalf of the European Commission, does not acknowledge the underfunding of ME/CFS research in Europe nor does it propose new initiatives to address this urgent problem. Evelien Van DenContinue reading “Evelien responds to the EU Commission”

European Parliament adopts ME resolution

On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “European Parliament adopts ME resolution”

Press release – Scientists call for more European research on ME/CFS

Brussels, 10 June 2020  More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and their loved ones.Continue reading “Press release – Scientists call for more European research on ME/CFS”