Horizon Europe calls 2023-2024

On 6 December 2022, the European Commission approved the second work program of Horizon Europe for the years 2023-2024. In this article, we highlight several grants that may be relevant for scientists studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Introduction: what is Horizon Europe? Horizon Europe is the big research and innovation program of the EuropeanContinue reading “Horizon Europe calls 2023-2024”

A new response from the EU Commission

In February 2022, a group of Members of the European Parliament (MEPs) headed by Pascal Arimont wrote several letters on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the European Commission. This article provides an overview of the Commission’s response to these letters. The MEPs, who form the parliamentary interest group for ME/CFS, highlighted the lack ofContinue reading “A new response from the EU Commission”

World ME Alliance calls on WHO Director General to recognize ME alongside Long Covid

The World ME Alliance has written to Dr. Ghebreyesus of the World Health Organization (WHO) calling on him to ensure that progress for people with Long Covid doesn’t leave the millions already suffering with ME behind and to meet with representatives.  On Wednesday 12th October Dr. Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear the devastationContinue reading “World ME Alliance calls on WHO Director General to recognize ME alongside Long Covid”

Parliamentary interest group for ME/CFS writes to European Commission

The European parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has written two letters to the European Commission. One was addressed to Stella Kyriakides, European Commissioner for Health and Food Safety. The other was sent to the Directorate-General for Health and Food Safety (DG SANTE). Both letters highlight the lack of action taken afterContinue reading “Parliamentary interest group for ME/CFS writes to European Commission”

A parliamentary interest group for ME/CFS

On 28 January 2022, the first meeting of a new parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was held. Organized by Pascal Arimont, the group will allow for a more structured collaboration on topics concerning the illness ME/CFS in the European Parliament. The meeting brought together patient representatives, Members of the European ParliamentContinue reading “A parliamentary interest group for ME/CFS”

Summary of the PETI meeting on the ME/CFS petition

On 1 December 2021, the Committee on Petitions of the European Parliament (PETI) held a second discussion of petition 0204/2019 on biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A full recording of the meeting can be found below. Evelien’s speech The Vice-Chair of the Committee on Petitions, Tatjana Ždanoka, opened the discussion. She introducedContinue reading “Summary of the PETI meeting on the ME/CFS petition”

Renewed discussion of the EU petition

The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”

Horizon Europe calls 2021-2022

On 15 June, the European Commission approved the first work program of Horizon Europe for the years 2021-2022. In this article, we highlight several grants that may be relevant for scientists studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We hope that our advocacy efforts will lead to better funding opportunities for ME/CFS research in future workContinue reading “Horizon Europe calls 2021-2022”

Scoping study

There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”

Webinar in honor of the resolution’s anniversary

One year ago, the European Parliament adopted Resolution 2020/2580(RSP) on additional funding for biomedical research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS).  In honor of this anniversary, Renew Europe, Spanish MEP Jordi Cañas and patient organization CONFESQ are hosting a webinar on June 30, 17:00-18:45 CEST, titled: “Challenges and Opportunities for ME/CFS research in Europe”.  TheContinue reading “Webinar in honor of the resolution’s anniversary”