The ME/CFS pledge for the European elections

We, at the European ME Coalition (EMEC) call upon candidates in the European elections to commit to supporting individuals suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) by endorsing our pledge. Those who have signed the pledge or actively supported the ME/CFS community in Europe in the past will be listed below on this website. WeContinue reading “The ME/CFS pledge for the European elections”

The COVI workshop on Long Covid: a brief summary

On 9 March, a workshop on Long Covid was held in the European parliament. Various invited experts and Members of Parliament highlighted a link between ME/CFS and Long Covid. In February, the European Parliament’s Special Committee on COVID-19 (the COVI Committee) published a draft report on lessons learned from the pandemic and recommendations for theContinue reading “The COVI workshop on Long Covid: a brief summary”

A new response from the EU Commission

In February 2022, a group of Members of the European Parliament (MEPs) headed by Pascal Arimont wrote several letters on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the European Commission. This article provides an overview of the Commission’s response to these letters. The MEPs, who form the parliamentary interest group for ME/CFS, highlighted the lack ofContinue reading “A new response from the EU Commission”

Parliamentary interest group for ME/CFS writes to European Commission

The European parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has written two letters to the European Commission. One was addressed to Stella Kyriakides, European Commissioner for Health and Food Safety. The other was sent to the Directorate-General for Health and Food Safety (DG SANTE). Both letters highlight the lack of action taken afterContinue reading “Parliamentary interest group for ME/CFS writes to European Commission”

A parliamentary interest group for ME/CFS

On 28 January 2022, the first meeting of a new parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was held. Organized by Pascal Arimont, the group will allow for a more structured collaboration on topics concerning the illness ME/CFS in the European Parliament. The meeting brought together patient representatives, Members of the European ParliamentContinue reading “A parliamentary interest group for ME/CFS”

Summary of the PETI meeting on the ME/CFS petition

On 1 December 2021, the Committee on Petitions of the European Parliament (PETI) held a second discussion of petition 0204/2019 on biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A full recording of the meeting can be found below. Evelien’s speech The Vice-Chair of the Committee on Petitions, Tatjana Ždanoka, opened the discussion. She introducedContinue reading “Summary of the PETI meeting on the ME/CFS petition”

Renewed discussion of the EU petition

The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”

New Video of Evelien’s Speech

Olivia Pham made a special version of the video of Evelien’s speech for ME/CFS patients in the European Parliament and included pictures of patients that were shown. Olivia Pham is a former student of Pleuni Pennings, associate professor at San Francisco State University in the Biology Department, who blogged about ME/CFS last year. Pleuni Pennings’ post inspiredContinue reading “New Video of Evelien’s Speech”

Parliamentary questions on ME/CFS

This page provides an overview of parliamentary questions on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) at the European level. The list of questions was last updated on 15 July 2020. 09/11/2017 – Question by Alex Mayer, S&D – Answer to Alex Mayer by Mr Moedas on behalf of the Commission 28/08/2018 – Question by Rory Palmer,Continue reading “Parliamentary questions on ME/CFS”

European Parliament adopts ME resolution

On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “European Parliament adopts ME resolution”