Thanks to Belgian member of parliament Pascal Arimont, EMEC was able to have a constructive meeting with representatives of the European Commission. The Commission has taken on board our concerns as strongly expressed by the European Parliament. We will continue to work to make sure that the commitments made in the ME/CFS resolution are turnedContinue reading “A constructive meeting”
Category Archives: News
Evelien responds to the EU Commission
On 18 August, Commissioner Mariya Gabriel responded to questions raised by Member of Parliament Jordi Cañas regarding the recent ME/CFS resolution. Unfortunately, the answer, provided on behalf of the European Commission, does not acknowledge the underfunding of ME/CFS research in Europe nor does it propose new initiatives to address this urgent problem. Evelien Van DenContinue reading “Evelien responds to the EU Commission”
Fact sheets
The European ME Coalition (EMEC) presents three new fact sheets about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The documents briefly summarize key facts about the economic and societal impact of ME/CFS in Europe and the recent efforts made by ME/CFS advocates including the petition submitted by Evelien Van Den Brink. The fact sheets will help toContinue reading “Fact sheets”
European Parliament adopts ME resolution
On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “European Parliament adopts ME resolution”
Research into the long-term consequences of the COVID-19 pandemic
In an open letter published on ME Awareness Day 2020, Evelien Van Den Brink asks the European parliament to make sufficient funds available for scientific research into the long-term consequences of COVID-19. COVID-19 has an enormous impact on European countries. The great number of people who have become infected, the severity of the infection, andContinue reading “Research into the long-term consequences of the COVID-19 pandemic”
Europe Day 2020
Today, 9 May, is Europe Day! A perfect time to celebrate the values of peace and unity on our great continent #EuropeDay On May 9th 1950 French Foreign Minster Robert Schuman presented his plan that would eventually lead to the formation of the European Union. The goal was to maintain peaceful relations between European countries. TheContinue reading “Europe Day 2020”
EU Committee adopts motion for resolution on ME
On Thursday, April 30th 2020 the Committee on Petitions of the European Parliament (PETI) adopted the Motion for a Resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). All 30 votes were in favour of the resolution, there were no abstentions. A press release about the vote was published on the website of the European Parliament.Continue reading “EU Committee adopts motion for resolution on ME”
Voting the ME resolution part I
The Committee on Petitions of the European Parliament will vote on the Short Motion for a Resolution on ME on Thursday, April 30 2020, 10:00 – 12:00 CEST. The draft Motion is available in English in the link below. You can find the announcement of the meeting here. Select your language in the top left corner. The agenda ofContinue reading “Voting the ME resolution part I”
A name and a website
Our advocacy group adopted an official name and created a website. Dear friends, Hopefully, this message finds you well. The COVID-19 outbreak has a deep impact on our societies. We hope you and your loved ones are safe. Despite the difficult circumstances, there are hopeful signs from our community. Many of us are still working tirelessly to improve the situationContinue reading “A name and a website”