The European parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has written two letters to the European Commission. One was addressed to Stella Kyriakides, European Commissioner for Health and Food Safety. The other was sent to the Directorate-General for Health and Food Safety (DG SANTE). Both letters highlight the lack of action taken afterContinue reading “Parliamentary interest group for ME/CFS writes to European Commission”
Category Archives: News
A parliamentary interest group for ME/CFS
On 28 January 2022, the first meeting of a new parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was held. Organized by Pascal Arimont, the group will allow for a more structured collaboration on topics concerning the illness ME/CFS in the European Parliament. The meeting brought together patient representatives, Members of the European ParliamentContinue reading “A parliamentary interest group for ME/CFS”
Summary of the PETI meeting on the ME/CFS petition
On 1 December 2021, the Committee on Petitions of the European Parliament (PETI) held a second discussion of petition 0204/2019 on biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A full recording of the meeting can be found below. Evelien’s speech The Vice-Chair of the Committee on Petitions, Tatjana Ždanoka, opened the discussion. She introducedContinue reading “Summary of the PETI meeting on the ME/CFS petition”
Renewed discussion of the EU petition
The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”
An overview of funding, biobanks, and networks for ME/CFS scientists
The European ME Coalition (EMEC) published an international overview of funding sources, biobanks and networks for scientists who are interested in studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Worldwide there is a dire shortage of funding opportunities for ME/CFS research. We hope, however, that this summary will facilitate the search for useful resources and that itContinue reading “An overview of funding, biobanks, and networks for ME/CFS scientists”
Horizon Europe calls 2021-2022
On 15 June, the European Commission approved the first work program of Horizon Europe for the years 2021-2022. In this article, we highlight several grants that may be relevant for scientists studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We hope that our advocacy efforts will lead to better funding opportunities for ME/CFS research in future workContinue reading “Horizon Europe calls 2021-2022”
Scoping study
There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”
Webinar in honor of the resolution’s anniversary
One year ago, the European Parliament adopted Resolution 2020/2580(RSP) on additional funding for biomedical research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS). In honor of this anniversary, Renew Europe, Spanish MEP Jordi Cañas and patient organization CONFESQ are hosting a webinar on June 30, 17:00-18:45 CEST, titled: “Challenges and Opportunities for ME/CFS research in Europe”. TheContinue reading “Webinar in honor of the resolution’s anniversary”
EMEC became an officially registered foundation
On 17 May 2021, the European ME Coalition (EMEC) became an officially registered foundation in the Netherlands! This step will make sure we stand strong and hopefully leads to new opportunities that will take our advocacy to the next level. EMEC will stay focused on the same mission at the European level, to make sureContinue reading “EMEC became an officially registered foundation”
World ME Day 2021
On May 12, 2021, World ME Day, we are asking the world to pay attention to the difficult situation of patients whose lives have been abruptly halted by the illness Myalgic Encephalomyelitis, sometimes called chronic fatigue syndrome (ME/CFS). Although there are millions of people with ME worldwide, the illness is under-researched and still poorly understood.Continue reading “World ME Day 2021”