Horizon Europe calls 2023-2024

On 6 December 2022, the European Commission approved the second work program of Horizon Europe for the years 2023-2024. In this article, we highlight several grants that may be relevant for scientists studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Introduction: what is Horizon Europe? Horizon Europe is the big research and innovation program of the EuropeanContinue reading “Horizon Europe calls 2023-2024”

The European call on ME/CFS: an overview and what follows next

More than 2 years after the adoption of the ME/CFS resolution, the European Commission has finally taken an initiative to support research on ME/CFS. The Horizon Europe work program 2023-2024 includes a call on “tackling high-burden for patients, under-researched medical conditions.” This call gives ME/CFS researchers improved opportunities to compete for a big European grantContinue reading “The European call on ME/CFS: an overview and what follows next”

A new response from the EU Commission

In February 2022, a group of Members of the European Parliament (MEPs) headed by Pascal Arimont wrote several letters on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the European Commission. This article provides an overview of the Commission’s response to these letters. The MEPs, who form the parliamentary interest group for ME/CFS, highlighted the lack ofContinue reading “A new response from the EU Commission”

Parliamentary interest group for ME/CFS writes to European Commission

The European parliamentary interest group on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has written two letters to the European Commission. One was addressed to Stella Kyriakides, European Commissioner for Health and Food Safety. The other was sent to the Directorate-General for Health and Food Safety (DG SANTE). Both letters highlight the lack of action taken afterContinue reading “Parliamentary interest group for ME/CFS writes to European Commission”

Summary of the PETI meeting on the ME/CFS petition

On 1 December 2021, the Committee on Petitions of the European Parliament (PETI) held a second discussion of petition 0204/2019 on biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A full recording of the meeting can be found below. Evelien’s speech The Vice-Chair of the Committee on Petitions, Tatjana Ždanoka, opened the discussion. She introducedContinue reading “Summary of the PETI meeting on the ME/CFS petition”

Renewed discussion of the EU petition

The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”

Scoping study

There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”

Work in Progress

Recently, the European ME Coalition (EMEC) had a meeting with representatives of the European Commission. Last year the European Parliament adopted a resolution that called for additional funding for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). EMEC recently had a meeting with representatives of the European Commission to discuss the follow-up on the resolutionContinue reading “Work in Progress”

The next step: a new proposal by the European Commission

In response to a parliamentary question by Pascal Arimont, the European Commission stated that it is working to address under-investigated conditions, of which ME/CFS is a paradigmatic example, in the first work programme of Horizon Europe. Although the details of the proposal are still confidential, we believe this could be an important step towards increasedContinue reading “The next step: a new proposal by the European Commission”

A constructive meeting

Thanks to Belgian member of parliament Pascal Arimont, EMEC was able to have a constructive meeting with representatives of the European Commission. The Commission has taken on board our concerns as strongly expressed by the European Parliament. We will continue to work to make sure that the commitments made in the ME/CFS resolution are turnedContinue reading “A constructive meeting”