Renewed discussion of the EU petition

The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”

Scoping study

There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”

World ME Day 2021

On May 12, 2021, World ME Day, we are asking the world to pay attention to the difficult situation of patients whose lives have been abruptly halted by the illness Myalgic Encephalomyelitis, sometimes called chronic fatigue syndrome (ME/CFS).  Although there are millions of people with ME worldwide, the illness is under-researched and still poorly understood.Continue reading “World ME Day 2021”

EMEC supports letters to French authorities

The European ME Coalition (EMEC) sent letters to several French health authorities in support of the excellent letters that were recently sent by the French organizations Association fran├žaise du Syndrome de Fatigue Chronique (ASFC) and MillionsMissing France.  Both organizations asked the French authorities to improve the situation of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)Continue reading “EMEC supports letters to French authorities”