Renewed discussion of the EU petition

The Committee on Petitions plans to discuss the progress of petition 0204/2019 on funding for research on myalgic encephalomyelitis. EMEC member Evelien Van Den Brink will give a short speech during the meeting. The meeting is planned to take place in Brussels on 1 December 2021. The petition on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) isContinue reading “Renewed discussion of the EU petition”

Horizon Europe calls 2021-2022

On 15 June, the European Commission approved the first work program of Horizon Europe for the years 2021-2022. In this article, we highlight several grants that may be relevant for scientists studying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We hope that our advocacy efforts will lead to better funding opportunities for ME/CFS research in future workContinue reading “Horizon Europe calls 2021-2022”

Scoping study

There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”

Webinar in honor of the resolution’s anniversary

One year ago, the European Parliament adopted Resolution 2020/2580(RSP) on additional funding for biomedical research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS).  In honor of this anniversary, Renew Europe, Spanish MEP Jordi Cañas and patient organization CONFESQ are hosting a webinar on June 30, 17:00-18:45 CEST, titled: “Challenges and Opportunities for ME/CFS research in Europe”.  TheContinue reading “Webinar in honor of the resolution’s anniversary”

EMEC became an officially registered foundation

On 17 May 2021, the European ME Coalition (EMEC) became an officially registered foundation in the Netherlands!  This step will make sure we stand strong and hopefully leads to new opportunities that will take our advocacy to the next level. EMEC will stay focused on the same mission at the European level, to make sureContinue reading “EMEC became an officially registered foundation”

World ME Day 2021

On May 12, 2021, World ME Day, we are asking the world to pay attention to the difficult situation of patients whose lives have been abruptly halted by the illness Myalgic Encephalomyelitis, sometimes called chronic fatigue syndrome (ME/CFS).  Although there are millions of people with ME worldwide, the illness is under-researched and still poorly understood.Continue reading “World ME Day 2021”

Work in Progress

Recently, the European ME Coalition (EMEC) had a meeting with representatives of the European Commission. Last year the European Parliament adopted a resolution that called for additional funding for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). EMEC recently had a meeting with representatives of the European Commission to discuss the follow-up on the resolutionContinue reading “Work in Progress”

New Video of Evelien’s Speech

Olivia Pham made a special version of the video of Evelien’s speech for ME/CFS patients in the European Parliament and included pictures of patients that were shown. Olivia Pham is a former student of Pleuni Pennings, associate professor at San Francisco State University in the Biology Department, who blogged about ME/CFS last year. Pleuni Pennings’ post inspiredContinue reading “New Video of Evelien’s Speech”

EMEC supports letters to French authorities

The European ME Coalition (EMEC) sent letters to several French health authorities in support of the excellent letters that were recently sent by the French organizations Association française du Syndrome de Fatigue Chronique (ASFC) and MillionsMissing France.  Both organizations asked the French authorities to improve the situation of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)Continue reading “EMEC supports letters to French authorities”