On 1 December 2021, the Committee on Petitions of the European Parliament (PETI) held a second discussion of petition 0204/2019 on biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). A full recording of the meeting can be found below. Evelien’s speech The Vice-Chair of the Committee on Petitions, Tatjana Ždanoka, opened the discussion. She introducedContinue reading “Summary of the PETI meeting on the ME/CFS petition”
Category Archives: Campaigns
New Video of Evelien’s Speech
Olivia Pham made a special version of the video of Evelien’s speech for ME/CFS patients in the European Parliament and included pictures of patients that were shown. Olivia Pham is a former student of Pleuni Pennings, associate professor at San Francisco State University in the Biology Department, who blogged about ME/CFS last year. Pleuni Pennings’ post inspiredContinue reading “New Video of Evelien’s Speech”
Press release – Scientists call for more European research on ME/CFS
Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and their loved ones.Continue reading “Press release – Scientists call for more European research on ME/CFS”
Speech
On 3 October 2019 EMEC co-founder and ME/CFS patient Evelien Van den Brink made a powerful speech in the European Parliament. A video recording and (unofficial) transcript of the speech and subsequent comments by European officials are provided below. EU Committee on Petitions – Committee meeting – 3 October 2019 Tatjana Ždanoka, vice-chair of theContinue reading “Speech”
Petition
EMEC co-founder Evelien Van Den Brink has submitted petition No 0204/2019 on a request for funding for biomedical research on Myalgic Encephalomyelitis. The petition has received strong support from the ME/CFS community and has been signed 14.000 times In March 2019 Dutch ME/CFS patient Evelien Van Den Brink submitted petition No 0204/2019 to the EuropeanContinue reading “Petition”
Resolution
On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “Resolution”
Open letter
More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The open letter and a full list of signees is available below. Open letter on funding for biomedical research into Myalgic Encephalomyelitisin the European Union Myalgic Encephalomyelitis (ME), sometimes referred to asContinue reading “Open letter”