Scoping study

There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European Union. Representatives of theContinue reading “Scoping study”

Webinar in honor of the resolution’s anniversary

One year ago, the European Parliament adopted Resolution 2020/2580(RSP) on additional funding for biomedical research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS).  In honor of this anniversary, Renew Europe, Spanish MEP Jordi Cañas and patient organization CONFESQ are hosting a webinar on June 30, 17:00-18:45 CEST, titled: “Challenges and Opportunities for ME/CFS research in Europe”.  TheContinue reading “Webinar in honor of the resolution’s anniversary”

Evelien responds to the EU Commission

On 18 August, Commissioner Mariya Gabriel responded to questions raised by Member of Parliament Jordi Cañas regarding the recent ME/CFS resolution. Unfortunately, the answer, provided on behalf of the European Commission, does not acknowledge the underfunding of ME/CFS research in Europe nor does it propose new initiatives to address this urgent problem. Evelien Van DenContinue reading “Evelien responds to the EU Commission”

Fact sheets

The European ME Coalition (EMEC) presents three new fact sheets about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The documents briefly summarize key facts about the economic and societal impact of ME/CFS in Europe and the recent efforts made by ME/CFS advocates including the petition submitted by Evelien Van Den Brink. The fact sheets will help toContinue reading “Fact sheets”

Parliamentary questions on ME/CFS

This page provides an overview of parliamentary questions on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) at the European level. The list of questions was last updated on 15 July 2020. 09/11/2017 – Question by Alex Mayer, S&D https://www.europarl.europa.eu/doceo/document/E-8-2017-006901_EN.html17/12/2017 – Answer to Alex Mayer by Mr Moedas on behalf of the Commission https://www.europarl.europa.eu/doceo/document/E-8-2017-006901-ASW_EN.html 28/08/2018 – Question by Rory Palmer,Continue reading “Parliamentary questions on ME/CFS”

European Parliament adopts ME resolution

On 17 June 2020, the European Parliament adopted a resolution on additional funding for biomedical research on Myalgic Encephalomyelitis (ME). 676 members of parliament voted in favour, 4 against with 8 abstentions. This is the first-ever resolution on ME adopted by the European Parliament and it could mean a historic breakthrough for scientific research intoContinue reading “European Parliament adopts ME resolution”

Press release – Scientists call for more European research on ME/CFS

Brussels, 10 June 2020  More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and their loved ones.Continue reading “Press release – Scientists call for more European research on ME/CFS”